Use knowledge from this site to make a plan. It's easy to get overwhelmed with information and your "to do" list. So if possible, put a support team of friends and family members together, each assigned with different tasks. The to-do list may include things such as research on your type of cancer, specific supplements, alternative therapies, experimental therapies in early clinical trials, as well as meal planning, food shopping, food prep, transportation, etc. With a good plan and team, you are far better prepared to do what it takes to survive. For example, before taking drugs, find someone who will take the time to look up the warnings and label recommendations dosage, etc, of your medications in the Physicians' Desk Reference (PDR), which is used by medical professionals for the same.
CPF provides information that can be used by cancer patients, caregivers, and loved ones, to help make decisions about cancer treatment. This website does not provide medical advice or replace the expertise of a physician. Patients can simply use the information here to help them understand the many treatment options and thus make more informed choices in conjunction with the advice of their physicians.
-- "The PDR states that BCNU (Ben's chemotherapy) is supposed to be stored in glass bottles, not plastic bags typical for other intravenous drugs, and it should be shielded from light by a dark cover. Otherwise, it rapidly loses its cytotoxicity. When I arrived to receive my treatment, however, the BCNU was in a plastic bag and totally unshielded from the light. When I noted the discrepancy to the nurses at the chemotherapy clinic, they consulted their own PDRs before returning the BCNU to the pharmacist next door to get it properly prepared... I realized, however, that patients need to be as educated as possible, and they must closely monitor the treatments they receive. ... Our medical system is riddled with mistakes that appear innocuous but can, in fact, undermine treatment. Such mistakes can also be fatal. A recent government report revealed that almost 100,000 fatalities occur in hospital settings each year because of mistakes in drug usage." - Surviving Terminal Cancer pg.49
This is a good example that Ben Williams uses to show how doing your homework and staying on top of every detail can make the difference between life and death. Developing and working a plan with a team of friends and family members is a good strategy for those who may feel overwhelmed by all the new information and lifestyle changes.
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